We are so excited to announce that we, along with the Ridge View Boys Basketball Team, are now selling t-shirts to raise money in HONOR OF Kayla Reese for 'Madison's Foundation' (http://www.madisonsfoundation.org). There is also a link on the right side bar. 100 percent of all t-shirt sales (after t-shirt cost has been paid) will go toward this worthy foundation which is dedicated to improving the quality and quantity of information available to parents of children with rare, life-threatening disease. They also work to facilitate effective communication among parents, physicians and medical experts. As Michelle and Gregg would tell you, information about Tetrasomy X is scarce. To have an organization that connects you with other families whose child has received a similar diagnosis is a God send. Having a child diagnosed with such a rare disease can leave you feeling alone and in the dark. But, Madison's Foundation is dedicated to connecting families and helping them walk the hard road that can come with such rare diseases.
Our ultimate goal of starting our own foundation for Kayla Reese is still alive! The process of starting a non-profit organization will take time but we know it will happen! This is only the beginning. So please show your support and purchase a Kayla Reese t-shirt. Check out the right side bar for all the information. Thank you all for your support. This wouldn't be possible with out you!
Susan
No comments:
Post a Comment